Us, Lately

Jimmy all transferred into his seat and ready to fly!

Spencer helping out around the new place


I feel like a general update is due.

Jimmy: he's going through a weird spell right now, and it's no fun.  He's fatiguing badly, having extremely uncomfortable muscle spasms in his abdominal area for the last 1-2 weeks, and he's been miserable. A doctor visit may be in the future if he doesn't see some relief in the next few days.

We've also learned a surgery is on the horizon.  Nothing too urgent, but something we maybe knew was coming. He has to have some scar tissue around his trach stoma cleaned up. The last five or so trach changes at Shepherd have been awful for him and it's not going to get any better until this surgery happens. One of them, they had to overhead page a doctor stat because Jimmy's RTs could not get the trach back in. So dangerous. During his ENT scope last week, we also learned that he has really bad heartburn (it probably doesn't feel like regular heartburn to him). We've been wondering why his voice was so hoarse for awhile; Doc said that was why. He was given meds for that, thankfully.  It's already gotten better.

We had a really great stretch for awhile, and a successful flight to NOLA with him feeling well in spite of extremely early travel times. Nothing happened to his wheelchair (go Delta!) and we found a company that delivered/picked up an accessible van to the airport for us to rent while in town.  Delta actually has a great accessibility department that was easy to work with and bumped us up to Delta comfort so Jimmy could have plenty of room -- at no cost.  It was so nice to sit next to my husband, so normally, if that makes sense. No aluminum between us. Gah, it was so nice.

This was Jimmy's first flight, post-injury. Fun fact: the last flight we took together was to New Orleans, as well, on our honeymoon about two months before the injury. 

Once we got past a certain little hiccup that may have involved me forgetting my ID at home, taking the MARTA back to Decatur, sprinting across town, learning that I wouldn't make it back in time, and finding a later flight while Jimmy went ahead and flew with his nurses -- yeahhhh, once we got past that craziness, it was a phenomenal trip. (I was so mad at myself. But, so busy making sure Jimmy had everything he needed, forgot to double check myself.)  Needless to say, when I finally got to the hotel and got settled, I had the best bloody mary of my life.

We ate at some of our favorites places, Jimmy got to meet Tony Romo (totally nice guy!), we got to sit RIGHT BEHIND the Pats bench for the Saints v Pats game (bucket list!), gambled a smidge (I was infatuated with the Anchorman nickel slots - hilarious!), and uh, did I mention the FOOD there and, the bloody marys that have fun things like bacon growing out of them?! Heart eyes.

The cops in NOLA were super accommodating to us as we walked to the Superdome from our hotel, stopping traffic for us as needed. And once we got to the tailgating courtyard, a nice fella wanted to offer NOLA hospitality and buy Jimmy a beer.  We were extremely in awe of how nice everyone was to us, considering were were both decked out in Pats gear.  The perfect end of that day for Jimmy, aside from the W: the Pats Defensive Coordinator came up to our seats after that game, and thanked Jimmy for coming!!! What?! I really need the Pats defense to get better so he keeps his job because I LOVE HIM. So mad I didn't get a pic.   

Spencer:  I cannot believe this one will be 3 in a few weeks.  She's going to school (Children's Morning Out) four days a week and it's the best thing for our little social butterfly. She adores it and it keeps her busy in the best way.  She's also "playing" U3 soccer once a week. Translation: I chase her around 30-40 minutes while she tries to constantly bolt to either playground located on each side of the field. Toddler soccer definitely sounded like a cute idea when we were signing her up. Yeah, no. Kill me now.

She also loves helping my to feed the fishies and water the flowers at the new house.

Me: So yeah, we bought a house! Our first one!  It's a few blocks from where we live and a complete time capsule. Never been updated, built in the 50s, super mid-century with tons-a-wood-paneling. So, we're gonna update it a bit and make it a little more wheelchair friendly. It's a ranch with a lower terrace level. It's got a massive yard (!!) and a beautiful back patio that basically sold the place for Jimmy. Selling point for Spencer? The fishies in the back fountain left by the prior owners and the chickens next door. 

I've been busy coordinating all of the things that come with new home-ownership, and renovating. Construction should begin in 3 or 4 weeks and we're hoping to be in the house in January. I think Spencer will love having her own room, Jimmy will love having his own man den and I will love it all. I'm thrilled. It's very exciting getting to work with someone who is helping me with layout, etc. and a contractor who is familiar with disability modifications. We cannot wait to finally be in our home. The next few months are going to be a whirlwind.

All of this + more is keeping us busy these days.

Excited to share some before and after pictures of the house as the work begins!



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